The Times obituary also cited information from Marks’ sister, Los Angeles TV journalist Suzanne Marques, about a genetic condition her brother had.
Marks, who was 38 when he died in St. Louis while working with the New Music ensemble Alarm Will Sound, which he confounded, was diagnosed at age 9 with HHT (hereditary hemorrhagic telangiectasia), a genetic disorder that causes formation of abnormal blood vessels, Marques tells the Times, expanding on a Facebook post she wrote the day after Marks died.
The disorder helped fuel his intellectual curiosity, Marques said, because it forced him to avoid physical exertion.
On the Slipped Disc New Music blog, commenter trolls (I guess there are trolls in every part of the internet, but this stunned me) have been horribly and unnecessarily brutal in questioning or condemning the fund-raising campaign for Kouyoumdjian.
I don’t know what unexpected expenses she might be facing as a result of her fiancé’s death, but it seems to me that it’s an individual’s prerogative to contribute to any cause he or she chooses.
Although I haven’t seen a wedding date for the couple mentioned, recent social media posts indicate the couple must have set one. There were mentions of picking out a dress and tasting wedding cakes, things that generally aren’t done prospectively,
Marks’ death Friday morning remains officially unexplained, though his sister, Suzanne Marques, in a lovingly gut-wrenching Facebook tribute to her “baby brother,” discusses a serious health issue he faced. Her exposition appears to provide at least a clue to what might have happened.
It cast something of a pall on this weekend’s Bang on a Can Marathon — a 10-plus hour concert of New Music, the world that nurtures the music of Marks and Kouyoumdjian — at New York University’s Skirball Performing Arts Center, It was addressed in a beautiful statement read by Bang on a Can All-Stars member Ken Thomson.
Talented young composer Matt Marks — really a quadruple threat, given his beautiful singing ability, high-level horn playing (he was a founding member of leading contemporary music ensemble Alarm Will Sound), and arranging — died Friday, May 11.
He was 38.
He died in St. Louis, Missouri, where Alarm Will Sound had performed on May 9 and had been doing some recording, the band’s marketing director, Michael Clayville, tells NPR’s Deceptive Cadence blog.
Learning of the sweet, funny, and sometimes acid-tongued Marks’ death under any circumstances would have been gutting. But my first clue came when composer Ted Hearne’s heartfelt tribute turned up in my Facebook feed Saturday night. I was in New Music setting that was such a familiar part of Marks’ life: at the Alexander Kasser Theater in Montclair, New Jersey, for a Peak Performances presentation of Julia Wolfe and Maya Beiser’s “Spinning,”with composer David Lang and artist Suzanne Bocanegra among the members of the audience.
The context — Peak Performances has a track record of incubating powerful new works, including David T. Little’s “Dog Days,” which springs from a well that also nourished Marks’ work — made the news of his death that much more of a gut punch.
Marks’ passing was announced on Facebook by his fiancee, Mary Kouyoumdjian.
No cause of death was given.
Alarm Will Sound posted an announcement hours after Kouyoumdjian, which precisely repeated her parting admonition: “We appreciate your sensitivity during this difficult time.”
The always funny Marks — he frequently offered random, wry, witty commentary on Twitter, lately as “Matt Marks (aka JonBenét Gramsci)” and for many years, simply under the childlike moniker “Mafoo” — died the morning after he tweeted news that the National Endowment for the Arts had approved a $10,000 grant for the staging of his splendid opera, “Mata Hari” (seen last year at New York’s Prototype Festival) at the West Edge Opera in Berkeley, California, in August.
— Matt Marks (aka JonBenét Gramsci) (@mattmarks) May 10, 2018
WATCH: An excerpt from composer Matt Marks’ opera “Mata Hari”:
I saw and was impressed by “Mata Hari” at Prototype — where the composer, as always made a point to offer a cheerful hello — Will You Miss Me When I’m Gone? last posted about him in 2010, after a performance of his earlier work, “The Little Death: Vol. 1,” which he also performed with soprano Mellissa Hughes.
So, I couldn’t say I knew him well, and don’t wish to take anything away from his close friends and family. I simply knew him through his often brilliant and usually funny work, and his public persona of a down-to-earth person who was consistently pleasant and friendly.
Marks had only begun to reveal the full extent of his ability. He’s a composer who always held a special place in my heart because I got to see him and his work early on and watch him grow and blossom.
R.I.P. Matt Marks.
WATCH: The Beatles’ “Revolution No. 9,” arranged by Matt Marks:
Composer-performer Matt Marks, seen here performing in 2010, died Friday from heart failure, his fiancée, composer Mary Kouyoumdjian, tells The New York Times.
Will You Miss Me When I'm Gone? 